C H A N G I N G
F U T U R E S
ABOUT
US
Cystic fibrosis has long been defined by limits - shortened timelines, difficult treatments, and an uncertain future. For many families, the journey begins in childhood, often captured in the well-known “65 Roses” story - a young boy’s attempt to pronounce a diagnosis that would come to shape his life. For decades, that story reflected the reality of CF: a disease that too often cuts life short.
Today, that reality is changing.
Medical advances have extended life expectancy, allowing more people with cystic fibrosis to reach adulthood than ever before. But longer lives have revealed a new set of challenges; ones we haven’t been prepared to address. Adults with CF are now facing complex and serious health risks, including gastrointestinal disease, chronic inflammation, and significantly increased rates of cancer.
Changing Futures was created to meet this moment.
Our work is focused on advancing the research needed to better understand and treat these emerging complications. By directly funding scientists and studies in areas often overlooked, we accelerate progress where it matters most - closing critical gaps in care and improving long-term outcomes for people living with CF.
At the same time, we are committed to building a more informed and connected community -one that reflects the evolving reality of cystic fibrosis today. We believe progress should not stop at survival. It should extend to quality of life, long-term health, and the confidence that the future is being actively redefined.
Changing Futures exists to ensure that as the story of cystic fibrosis evolves, the science, support, and strategy evolve with it.
Cystic fibrosis has long been defined by limits - shortened timelines, difficult treatments, and an uncertain future. For many families, the journey begins in childhood, often captured in the well-known “65 Roses” story - a young boy’s attempt to pronounce a diagnosis that would come to shape his life. For decades, that story reflected the reality of CF: a disease that too often cuts life short.
Today, that reality is changing.
Medical advances have extended life expectancy, allowing more people with cystic fibrosis to reach adulthood than ever before. But longer lives have revealed a new set of challenges; ones we haven’t been prepared to address. Adults with CF are now facing complex and serious health risks, including gastrointestinal disease, chronic inflammation, and significantly increased rates of cancer.
Changing Futures was created to meet this moment.
Our work is focused on advancing the research needed to better understand and treat these emerging complications. By directly funding scientists and studies in areas often overlooked, we accelerate progress where it matters most - closing critical gaps in care and improving long-term outcomes for people living with CF.
At the same time, we are committed to building a more informed and connected community -one that reflects the evolving reality of cystic fibrosis today. We believe progress should not stop at survival. It should extend to quality of life, long-term health, and the confidence that the future is being actively redefined.
Changing Futures exists to ensure that as the story of cystic fibrosis evolves, the science, support, and strategy evolve with it.
Joel Steiner
Leading Changing Futures with passion and dedication, Joel Steiner drives our mission to support Cystic Fibrosis patients and advance groundbreaking research on GI side effects.
Mike Weiss
Leading strategic initiatives and fostering partnerships to drive impactful research and support for Cystic Fibrosis patients.
Bobby Williams
Committed to advancing the mission of Changing Futures, leveraging his expertise and passion to improve the lives of those affected by Cystic Fibrosis through dedicated research and support initiatives.
Chris Kelley
Bringing dedication and strategic insight to Changing Futures, helping to drive our mission forward and support Cystic Fibrosis patients through innovative research and compassionate care.
Don Gentile
Providing invaluable expertise and guidance to Changing Futures, ensuring our initiatives are effective and our mission to support Cystic Fibrosis patients is upheld with integrity.
Louis A. Tramontozzi, III, MD
Providing expert guidance to Changing Futures, ensuring our initiatives are informed by the latest advancements in Cystic Fibrosis and GI health research.
Joe Montesano
Bringing strategic vision and commitment to Changing Futures, spearheading initiatives to enhance the lives of Cystic Fibrosis patients through innovative research and community support.